About FieryBones
FieryBones has been created to connect and share stories of all the people suffering from autoimmune forms of arthritis, such as Rheumatoid Arthritis, Ankylosing spondyloarthritis, Psoriatic arthritis and many others, across the world. When you read stories of how others are fiercely coping with this illness, you realize that you are not alone in this daunting journey! You can also submit your story to share it with the community who truly understands.
For people living with chronic auto-immune illness, it is a daily struggle to balance their personal and professional lives with the unpredictability of these painful diseases.
If you would like to read more about rheumatoid arthritis, please click here.
Life stories
Story of Wheelchair and Eye
“If I tell you I have travelled 58 countries till date, I am sure you will believe it. But if I tell you that I have visited them all on my wheelchair, will you?"
Listen to the story of Parvinder Chawla (fondly known as "Pammu"). Pammu has traveled to 58 countries across six continents on her wheelchair. FieryBones had the opportunity to interact with this fantastic cheerful lady, and take our readers through her life’s roller coaster ride.
Story of Lori MacLean (R.A.Raw channel)
"Sometimes, people ask me what kind of hacks do you have? I don't have any hacks. I just deal."
Listen to the story of Lori MacLean, a vlogger and public speaker. Learn more about her experience of battling Rheumatoid Arthritis since the age of 2. She discusses with the community about what has RA taught her and how she manages to live life to the fullest despite the hurdles life threw at her.
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Articles
About Rheumatoid Arthritis (RA)
Rheumatoid arthritis (RA) is a chronic autoimmune disease in which the body’s immune system which normally protects its health by attacking foreign substances like bacteria and viruses, mistakenly attacks the joints. This creates inflammation that causes the tissue that lines the inside of joints (the synovium) to thicken, resulting in swelling and pain in and around the joints.
RA affects the joints of the hands, feet, wrists, elbows, knees, and ankles and generally, the joints affected are symmetrical. That means if one knee or hand is affected, usually the other one is,too.
Common Symptoms include joint pain, joint swelling, fatigue, low grade, fever, malaise, morning stiffness, loss of appetite and loss of weight.
Currently, there is no permanent cure for RA, but treatments can improve symptoms and slow the progress of the disease.
Hi, welcome to FieryBones! I was diagnosed with RA in mid-2017. It's been a hell of a ride so far and RA still keeps surprising me every single day! Although it is manageable now, I am yet to accept the new reality, much to the distress of my doctors. Pre-RA, I was quite an adventure junkie and still look forward to continue doing them - just a matter of time! I am a closed person who would bottle up emotions, so opening up about RA has not been easy. But I realized this unwanted companion is here to stay and through reading stories of other people who are going through a similar or even more challenging roller coaster would help deal with this more fiercely! So a big shout out - to all the strong warriors!
-Pooja Panchamia